It's been quite an adventure raising a now-teenager who was diagnosed with diabetes just after her first birthday! Please realize that what you'll read here is not intended as medical advice; it's just the ramblings of a sleep-deprived mom. Always consult your medical team about your treatment options, but do stop by from time to time for a bit of perspective.
Showing posts with label diabetes mistakes. Show all posts
Showing posts with label diabetes mistakes. Show all posts
I Almost Asked
My daughter's Dexcom G4 sometimes chooses to stop 'sharing' these days, making its receiver the only source of information. When this happens, as it did this week, I try to take a quick peek at the receiver once in a while, just in case we need to talk about tweaks in the basals, carb ratios, correction factors and such.
I looked at the receiver this morning - it was on the table after breakfast - and yesterday morning showed a spike, reaching the top of the graph, and hanging there for an hour or so before coming back down to a reasonable range by noonish.
My initial instinct was to ask something along the lines of, 'What the heck happened yesterday???"
Then I realized three things:
1. I already knew what happened yesterday. Her grade had a delayed opening because of standardized testing at the high school. She had been out to breakfast with friends and she ate eggs and toast and potatoes- which was a better choice than pancakes - but she clearly either under-guessed on the potatoes or forgot to bolus until too late.
2. The evidence showed that she'd picked up on her mistake, corrected her blood sugar, and gotten herself back in range by lunch. She had solved the problem by herself.
3. Nit-picking is counterproductive. She'd just get defensive if I brought it up, no matter how much I tried to turn the conversation towards 'all's well that ends well.'
So I didn't ask.
Crisis! (Averted)
'AAAAH CRISIS'
That text arrived around 11:30 the other morning.
Having a 16 year old girl, lots of possibilities came to mind. Forgotten clarinet on a band day, wardrobe malfunction, unexpected test? Turns out it was a diabetes crisis.
'I bolused 10.8 for lunch then 2 more for muffins so then I looked at Dexi and I was skyrocketing and then I looked at history to see if I had bolused and I only saw the 2 units so then I bolused 8.8 more ahhhhh'
So, I confirmed with her via text, she had bolused 8.8 units of insulin with no matching food? She had forgotten that she had bolused for the main part of her lunch, panicked at the rapidly rising blood sugar, and therefore given insulin for it twice?
'YES I RLY SCREWED UP'
While she freaked out, knowing that an overdose of insulin had the potential to be catastrophic, I trusted that her friends would take care of her mental health while I focused on how to fix the problem.
'What's the current insulin to carb ratio?'
'1:8.'
If 1 unit of insulin covers 8 carbs, I reasoned, then 8 units covers 64 carbs, 9 units covers 72 carbs- essentially reverse-engineering of the math to figure out a game plan. She would need to consume some serious carbs to balance out the equation.
'I'm currently eating a tootsie roll pop which is 15 carbs.' (There's a teacher who sells these, essentially at cost, in his classroom...a little mysterious but very helpful at that particular moment.)
'And then I need how many more? Math for me.'
I'll spare you some details, but because to it turned out she was, indeed, skyrocketing we decided that the tootsie pop, one juice box and the pretzels which were to be her snack after school before play rehearsal would be a sufficient start as long as she kept a close eye on the Dexcom. It was a total of about 50 carbs.
It worked out pretty well. At the two hour mark from the error, she was about 150 and continued a slow downward trajectory during play rehearsal but was over 100 when she got home- hungry because she'd eaten her afternoon snack at 11:30 a.m.
Just Another Morning
6:15 Teen crawls out of bed later than is ideal. Finds nondairy yogurt, granola, berries.
6:18 Checks blood sugar. Programs breakfast bolus.
6:19 Discovers pump's insulin cartridge is almost empty after bolus. Implores mother to fill
a new one.
6:20 Mother inhales cheerios, chugs coffee, gets dressed, packs lunch.
6:40 Mother listens to stream of consciousness commentary on teen's outfit, hair, and tonight's
potential homework while filling an insulin cartridge and priming the pump.
6:59 Teen is delivered to school.
7:26 Text: 'I forgot Dexi.'
7:27 Text: 'Unless you put it in my bag?'
7:45 Mother (belatedly) texts back: 'Nope. It's here on the kitchen counter.'
7:47 Text: 'Oh well.'
7:55 Text: 'You wouldn't drop it off for me would you?'
7:56 Mother takes deep breath and decides that, yes, she would (and should) drop it off.
7:57 Text: 'I'll drop it off by 8:15.'
8:13 Mother arrives at school. Mother who is usually happy that school is secured as tightly as
Fort Knox is not happy today. Mother is buzzed into vestibule with table on which to leave
forgotten items for kids to pick up. Mother is uncomfortably holding Dexcom thinking, 'I'm
not so sure about leaving this here' a when kind secretary appears behind large (bulletproof?)
window in vestibule.
8:15 Mother says, 'Hi. This is a medical device- I'm not sure I want to just leave it here. My
daughter knows it's coming and will pick it up between periods.'
8:16 Kind secretary says, 'Here- let me take it. I'll give it to the nurse.' Secretary jimmies open
a pass-through slot like one might find at a shady check-cashing joint, and takes Dexi.
8:17 Mother thanks secretary and leaves.
8:18 Text: 'Gave Dexi to secretary who will give to the nurse.'
8:50 Text: 'Ok I will go grab it now.'
9:29 Proof arrives, in form of blaring cell phone alarm, that teen is in possession of Dexcom:
9:42 Text: 'I'm low so I'm not playing gym.'
And so on and so forth...
Roll Over Beethoven
I heard it from across the crowded room. The unmistakable melody. A terrible electronic version of 'Fur Elise' was coming from my daughter's insulin pump. What, I often wonder, would Beethoven think?
Eye contact confirmed that this wasn't a simple 'Bolus cancelled by user button push' or 'Unable to communicate with pump' Animas Ping alarm. My kid looked both concerned and irritated. I made my way through a few conversation groups.
'I forgot to do a site change before we came. I'm out of insulin. It gave all it was supposed to give to cover what's on my plate but now I'm out.'
We were really enjoying this party. I was reveling in the opportunity to hold an adorable baby whose mom needed a civilized plate of food and adult conversation. My daughter was enjoying helping the little ones at the cookie decorating table. We were having great conversations with friends both new and old. To add atmosphere, it had just begun to snow. This particular festive gathering was exactly what we needed after a whirlwind weekend of holiday shopping and preparations.
We were not, I decided, going to let diabetes win the afternoon. My daughter ate a little less than she'd bolused for, to provide a cushion. We kept an eye on her numbers. She held steady for almost an hour, then her blood sugar started to creep up very slowly. We considered leaving then, but I had to return the baby, and then on the way to get our coats we found other people we wanted to talk to. The rise became more significant about twenty minutes later, and we started our round of goodbyes. But considering the homework that still needed to be done and the football that needed to be watched we wouldn't have stayed much longer no matter the diabetes circumstances.
We got home, replaced the insulin and the site, and bolused for an hour and a half worth of missed basal insulin in addition to the suggested correction for her blood sugar at the time (about 220...not bad at all). The rest of the night was uneventful blood sugar wise.
There were few minor downsides: I needed to heat up some leftovers since she had stopped eating anything but raw vegetables once she ran out of insulin. She missed out on a great spice cake. And the electronic Beethoven theme repeated itself every few minutes- but I'm guessing it probably wasn't audible to anyone but us over the music and conversation.
Looking back, I'm glad we didn't panic. There was no need to. She disconnects her pump at the pool for an hour at a time all summer. At the beach it's often longer. We do the same thing we did last night: make up the insulin once she's hooked back up to the pump. Ideal? No. Medical advice? Absolutely not. But sometimes it's more important not to let diabetes ruin a good time.
A Cautionary Tale
It was Saturday evening at 5:30. My daughter had, as is her custom, waited until the last minute to do a site change. In less than half an hour she would be leaving to go out to dinner with friends: a gathering to commemorate the end of summer. Just a quick site change and she would be off.
Supplies were gathered. The cartridge was filled. Wipes were applied. The pump was picked up and buttons were pressed to 'rewind' the area that holds the insulin in order to accommodate the new, full, cartridge. The motor started to buzz and then...
'BEEP boop BEEP boop.' It sounded like a very tiny ambulance. The message on the pump screen read: 'ALARM CALL SERVICE No delivery.' There was a code number.
It was then that our lives passed before our eyes. Diabetes-wise anyway.
Where were the syringes? When was the last time I'd given her an injection? She had never had to give herself an injection. Would she be able to figure it out in time to go out to dinner? When was the last time I'd written down all of the basal rates, insulin to carb ratios and correction factors? Probably a year ago. And where exactly were they anyway?
Without that information we would be challenged to figure out how much lantus to give her if the pump was actually dead. Then, how would we figure out how much novalog to give for dinner and for meals and corrections to come? I'd have to call our diabetes clinic and get help. On Saturday night of a holiday weekend. And what if a replacement pump couldn't come until Tuesday- after Labor Day? What if she had to go through her first day of high school on Lantus and Novalog shots?
My hands were shaking as I dialed the number on the back of the pump. 'For 24 hour technical assistance with your insulin pump system, press 1.' I pressed 1 and was connected to a new menu including: 'For 24 hour technical assistance with your insulin pump system, press 1.' I pressed 1 again and was connected to yet another new menu including: 'For 24 hour technical assistance with your insulin pump system, press 1.' Really? Maybe if I press harder? The third time was the charm.
The representative I spoke with did not seem panicked or pessimistic. This was encouraging. "Have you tried rebooting the pump by removing the battery?" I had not. "Let's try that." My daughter fetched a quarter. It took longer than usual, with my shaky hands, to use the quarter to unscrew the battery cap, but I did it. We removed the battery, waited a few seconds, put it back in. The alarm screen was gone. I was told to attempt to rewind again, and if that was successful to continue with the whole insulin replacement process while still on the phone with the representative.
As it began to become clear that things weren't as bad as I had imagined they might be, I said to the representative, "It sounds like this isn't as big a deal as I thought it might be...is this a common call you get?" She explained that when the pump rewinds it does a series of self-checks and that if it detects a possible abnormality this alarm screen comes up. Rebooting the pump and rewinding it again causes it to recheck itself and most of the time it does not alarm a second time, meaning (apparently) that the first one was a false alarm. She did say to call if it happens again, so that they can document it, and that if becomes a regular occurrence they would need to replace the pump.
In the end, we loaded up the new cartridge and primed the pump with no further problem. While my daughter finished getting herself ready to go out, I jotted down total daily doses from the pump's history, her basal rates and ratios, and every other number I could think of. And I set a reminder in my phone to do it again after the next endocrinologist appointment.
So please, pump users, take this as a cautionary tale. Please (today) make sure you have all your info jotted down or electronically stored somewhere other than your pump, and that you have the equipment and knowledge you need to activate your back-up plan. Hopefully, like us, you won't need it. With any luck you won't even be late for dinner.
Where were the syringes? When was the last time I'd given her an injection? She had never had to give herself an injection. Would she be able to figure it out in time to go out to dinner? When was the last time I'd written down all of the basal rates, insulin to carb ratios and correction factors? Probably a year ago. And where exactly were they anyway?
Without that information we would be challenged to figure out how much lantus to give her if the pump was actually dead. Then, how would we figure out how much novalog to give for dinner and for meals and corrections to come? I'd have to call our diabetes clinic and get help. On Saturday night of a holiday weekend. And what if a replacement pump couldn't come until Tuesday- after Labor Day? What if she had to go through her first day of high school on Lantus and Novalog shots?
My hands were shaking as I dialed the number on the back of the pump. 'For 24 hour technical assistance with your insulin pump system, press 1.' I pressed 1 and was connected to a new menu including: 'For 24 hour technical assistance with your insulin pump system, press 1.' I pressed 1 again and was connected to yet another new menu including: 'For 24 hour technical assistance with your insulin pump system, press 1.' Really? Maybe if I press harder? The third time was the charm.
The representative I spoke with did not seem panicked or pessimistic. This was encouraging. "Have you tried rebooting the pump by removing the battery?" I had not. "Let's try that." My daughter fetched a quarter. It took longer than usual, with my shaky hands, to use the quarter to unscrew the battery cap, but I did it. We removed the battery, waited a few seconds, put it back in. The alarm screen was gone. I was told to attempt to rewind again, and if that was successful to continue with the whole insulin replacement process while still on the phone with the representative.
As it began to become clear that things weren't as bad as I had imagined they might be, I said to the representative, "It sounds like this isn't as big a deal as I thought it might be...is this a common call you get?" She explained that when the pump rewinds it does a series of self-checks and that if it detects a possible abnormality this alarm screen comes up. Rebooting the pump and rewinding it again causes it to recheck itself and most of the time it does not alarm a second time, meaning (apparently) that the first one was a false alarm. She did say to call if it happens again, so that they can document it, and that if becomes a regular occurrence they would need to replace the pump.
In the end, we loaded up the new cartridge and primed the pump with no further problem. While my daughter finished getting herself ready to go out, I jotted down total daily doses from the pump's history, her basal rates and ratios, and every other number I could think of. And I set a reminder in my phone to do it again after the next endocrinologist appointment.
A Little Fear Can Be A Good Thing
I usually drop my daughter at her summer music program after helping make her lunch and gather her belongings for the day.
Last Friday I had to leave the house early and so she chose to walk the few blocks to the program rather than arriving half an hour before her first class and having to wait around. No big deal, I thought, and a great opportunity to be independent. When I left, she was eating breakfast, and her lunch was made. She had half an hour until she had to leave, plenty of time to get her stuff together and get out of the house.
She texted me before 9 to let me know she'd arrived at her destination and we continued on with our busy days.
Then at 11, my phone buzzed. Surreptitiously taking it out of my pocket for a glance, I saw this:
'I'm such an idiot I don't have the meter.'
Meanwhile the Dexcom sensor had breathed its last at 9 the night before and we'd decided a free day would be okay before replacing it.
The next text read: 'I felt low so I drank my one juice and now I'm eating and I'm gonna do like half my lunch and then I'm going to the store to buy a coke or something in case I'm low again.'
Fifteen minutes away and responsible for a group of 7 children until 12:15, and then expected to stay where I was until at least 1:30, I texted back,
'Sounds good.'
As it tuned out, she did absolutely the right thing with the lack of tools at hand. The low or low-ish she treated was likely real. When she bolused for lunch she factored in the amount of dancing she expected to do during the show rehearsal. As the afternoon wore on she thought often about how she was feeling. She realized, should she need it, that in addition to the soda she had purchased she had access to candy usually awarded as prizes for the daily trivia contest. When she got home her blood sugar was 79.
With some significant inconvenience to myself and others I could have left what I was doing to get a meter to her. Instead I let her wing it until her program was over for the day. Was it the safest plan? No. If I had it to do over again would I bail her out? I don't know. But when she got home, she said this:
'That was scary being without the meter. I don't think I'll forget it again.'
Sometimes a little fear can teach a very important lesson.
We Wouldn't Do This Again
At 8th Grade Graduation practice my daughter's class was told in no uncertain terms that they could not carry anything as they marched down the aisle. A two minute conversation would have led to her being allowed to carry her meter, but she didn't want to. She wanted to walk in empty-handed like the rest of her classmates. Having a 'what's the worst that could happen- it'll all be fine,' moment, I acquiesced. Here's what we did and why I wouldn't do it again:
Because the middle school's auditorium is small and infamously hot, the program was held in a large gymnasium at different school. The kids were to arrive at 9 a.m. and meet in the building next door to the one where the ceremony was held. At 9:30 they would process in and sit together in the front of the room. The program was expected to last until about 11 a.m.
Creating a safe diabetes plan would have been easier with pockets as part of the equation, but she had a great dress to wear. We knew a pump pack fit well underneath, but when we tried to add the Dexcom, there was an obvious bulge. At least when we added a roll of glucose tabs tucked into the waist band of the pump pack, there was not. Those glucose tabs were our insurance policy.
We decided that she would check her blood sugar and make any needed adjustments in the car on the way to the ceremony. There had been no mid-morning blood sugar issues of late, which made us feel more comfortable with this plan. If at any point when we were not together she felt she was low, she would err on the side of caution and would (with a discreet move practiced before leaving the house) obtain glucose tabs from beneath her dress and eat a couple. Then, once she was in the room with us, I would have the Dexcom and be able to signal her to eat glucose tabs as needed. No problem. Except these two unforeseen problems:
At about 9:25, just before the kids were to make their way into the ceremony, an audience member experienced a medical emergency. There was a nearly half hour delay while the person was treated and eventually taken away by ambulance. The kids were kept in their holding room in the next building over, too far away for the Dexcom to reach. The half hour we'd expected to be apart turned into an hour.
Also, as we arrived at the venue, we learned that the kids would be seated in the empty chairs facing the podium, not facing us as we'd originally assumed. So there was no eye contact to be made and no hand signals to be used should my daughter need to be aware of a need for her hidden glucose tabs.
The story has a happy ending. She left the ceremony with a blood sugar of 132, and a lovely award from the music department. But in retrospect this was not a smart decision. We should have had her carry her bag. Or asked a teacher who was supervising the kids in the other room to bring it over and slip it to my daughter once she was seated. Or found a roomier dress with pockets. As a rule, we don't even go around the corner without carrying a meter and a juice box. Because as we were reminded on 8th grade graduation day, you never really know what's going to happen.
What Did I Miss?
Today, we'll look back 2 years to a pool party for all girl scouts from our area. As troop leader, I was there, in charge of feeding and keeping track of my group of fifth grade girls.
This was our first pool visit of the season. My daughter disconnected her pump and got in with her friends. They then got out and opened a couple of bags of chips. "Can I?" "Just a few." We'd delivered a correction bolus for a 200-ish number on the way to the pool. With the exercise, I figured a couple of chips couldn't be too bad. Plus, to be honest, it seemed like such a 'normal kid' thing to sit on a circle on beach towels with your 11 year old friends, talking, braiding each other's hair, and muching on chips.
After another swim, the pizza arrived. I did (to my credit) remind her to plug her pump back in and check. 230. I juggled the meter-remote, paper plates for all the girls, opening the grapes and watermelon, pointing out the drink cooler and providing napkins. I bolused for pizza and watermelon. I might have added the bg.
She ate, unplugged, and headed for the water slide. An hour later they came back for dessert. A cupcake and 2 mini girl scout cookies. She was already partway through the cupcake when I realized she hadn't checked again. She was reading the box for the cookies (reclaiming a bit of good will). "4 each, mom." I had made the cupcakes, so had a number in my head for those. Still juggling dessert requests and napkins, I bolused. I glanced over. She had no pump attached. She plugged in and we bolused again.
Half an hour later, she found me talking with a mom on the other side of the pool. A friend's sister's troop and given our troop mini fire cracker pops. Could she eat hers (which she was holding, open, in her hand)? From the cobwebs of my brain came the knowledge that these were 'only' 9 carbs. I gave the o.k. She was standing there with her friends, on the way to the shuffleboard court. She bolused for it when she got back to the table.
Once we'd packed up and gotten in the car, her blood sugar was around the 250 mark. She corrected and had some water when she got home. An hour later, still 250. Obviously, the whole evening was riddled with diabetes mis-steps. Chips with no insulin (probably more than a few), not accounting for missed insulin in the pool, a dinner diet of pizza, chips, watermelon, cupcakes, cookies and popsicles. Everything was bolused for on the fly, often after the food was partially consumed.
Yet, you diabetes detectives out there, there's one more big reason that high number didn't come down.
Anybody guess it?
I had bolused for dessert while the pump was detached. Then again when it was. The pump included all of that insulin in the insulin on board total. So when we went to correct the 250 after the party, it gave very little, assuming a whole extra cupcake and 2 cookie's worth of insulin was still hanging around.
Any 'party by the pool' event is a challenge, diabetes-wise. The level of difficulty rises exponentially if I'm in charge of more people than my own kid. In the end, it was a fun evening and the 250 came down quickly once I'd realized the error of my ways. But keeping track of diabetes at this kind of event is a full-time job.
This was our first pool visit of the season. My daughter disconnected her pump and got in with her friends. They then got out and opened a couple of bags of chips. "Can I?" "Just a few." We'd delivered a correction bolus for a 200-ish number on the way to the pool. With the exercise, I figured a couple of chips couldn't be too bad. Plus, to be honest, it seemed like such a 'normal kid' thing to sit on a circle on beach towels with your 11 year old friends, talking, braiding each other's hair, and muching on chips.
After another swim, the pizza arrived. I did (to my credit) remind her to plug her pump back in and check. 230. I juggled the meter-remote, paper plates for all the girls, opening the grapes and watermelon, pointing out the drink cooler and providing napkins. I bolused for pizza and watermelon. I might have added the bg.
She ate, unplugged, and headed for the water slide. An hour later they came back for dessert. A cupcake and 2 mini girl scout cookies. She was already partway through the cupcake when I realized she hadn't checked again. She was reading the box for the cookies (reclaiming a bit of good will). "4 each, mom." I had made the cupcakes, so had a number in my head for those. Still juggling dessert requests and napkins, I bolused. I glanced over. She had no pump attached. She plugged in and we bolused again.
Half an hour later, she found me talking with a mom on the other side of the pool. A friend's sister's troop and given our troop mini fire cracker pops. Could she eat hers (which she was holding, open, in her hand)? From the cobwebs of my brain came the knowledge that these were 'only' 9 carbs. I gave the o.k. She was standing there with her friends, on the way to the shuffleboard court. She bolused for it when she got back to the table.
Once we'd packed up and gotten in the car, her blood sugar was around the 250 mark. She corrected and had some water when she got home. An hour later, still 250. Obviously, the whole evening was riddled with diabetes mis-steps. Chips with no insulin (probably more than a few), not accounting for missed insulin in the pool, a dinner diet of pizza, chips, watermelon, cupcakes, cookies and popsicles. Everything was bolused for on the fly, often after the food was partially consumed.
Yet, you diabetes detectives out there, there's one more big reason that high number didn't come down.
Anybody guess it?
I had bolused for dessert while the pump was detached. Then again when it was. The pump included all of that insulin in the insulin on board total. So when we went to correct the 250 after the party, it gave very little, assuming a whole extra cupcake and 2 cookie's worth of insulin was still hanging around.
Any 'party by the pool' event is a challenge, diabetes-wise. The level of difficulty rises exponentially if I'm in charge of more people than my own kid. In the end, it was a fun evening and the 250 came down quickly once I'd realized the error of my ways. But keeping track of diabetes at this kind of event is a full-time job.
Birthday Day and Other Heavy Eating Occasions
My daughter's friend had a birthday last week. It was on the same day as mine. The kids have found a way to skirt the school nutrition policy of 'no outside food for celebrations' by bringing in treats to share at lunch. So lunch that day included oreos, hershey kisses, doritos and munchkins. To her credit, she ate the sandwich and grapes I packed first, but she sampled the rest as well.
For dinner we went to a Thai restaurant and she had an uncountable portion of pineapple fried rice. We came home and had mini cupcakes and cannolis for dessert.
Our household diabetes philosophy (yours may vary) allows sweets, and even junk food. Birthdays include cake. S'mores over the fire pit or a trip for italian ice are part of summer fun. A little bag of chips for the walk home is o.k. Most days include cookies or a non-dairy frozen treat before bed. Taken one at a time, or even two in one day, we're o.k. with both the questionable nutrition of it and with the diabetes challenges.
'Everything in moderation' is the general idea. But on days when moderation goes out the window, I'm left feeling torn. Should we ever let her eat this way?
"Yes! You can eat anything except poison...or cookies made with poison..." is one side of the coin. But she really can't eat anything and maintain the same kind of blood sugar numbers she does when she eats healthy, countable things. Twenty carbs of oreos and doritos is not the same as twenty grapes. Half a restaurant portion of pineapple fried rice and a bakery cupcake simply can't be counted and dosed for as accurately as portions prepared, weighed and measured at home. Add the 'one more dorito because everyone else is still eating,' or the picking all the pineapple out of the fried rice despite bringing home 'half,' and the challenge increases.
Still, I lean towards letting her learn from her mistakes over outright forbidding her from eating like this. She'll encounter days with heavy eating potential for the rest of her life, so perhaps helping her develop a healthy sense of how to handle them is the answer. Last week's birthday day was an example of how not to handle it. And she knew it. She was upset that her blood sugar was high for hours. Between that lengthy high and the general junk food overload, she had some lingering indigestion into the next day.
Sometimes she makes better choices. Last weekend, she said no to lunch out with a friend before an evening birthday party because it would consist of too much uncountable food in one day. She's come home from parties and told us she was the only one who ate the proffered grapes or salad to balance out the junk. She will report with alarm how many cookies or cupcakes some kids consume in one sitting.
I guess it's like all things diabetes, really. We do our best. We try to fit the diabetes stuff into what we consider a normal, healthy lifestyle. We try not to let it ruin our fun. We learn from our mistakes. And we're never quite sure we're doing it right.
Why We're Not In The Cloud
Making mistakes and learning from them is, in my opinion, part of being 12.
When my daughter says, "I don't need to study for the quiz. We reviewed in class and I've got it," I say o.k. When she puts off a chore until the last minute, I don't nudge. When she's upset by the results of these decisions, we talk about what happened and she learns from her mistakes.
"Didn't Dexi alarm?"
"Yeah, but I was only 200 and I was in art and my hands were all gross."
"O.k., but now it's over an hour later. What could you have done differently?"
"Checked after I cleaned up."
"Yeah...you'd probably be lower by now if you'd corrected, right?"
"Yeah. I'll check sooner next time."
In this scenario, she made some decisions. They weren't great ones. But we talked about it, calmly, and I'll hope that the next decisions she makes in these circumstances are better. Had I been watching that CGM graph on my mobile device in the hour before she got home*, I'm not sure I would have handled the conversation as calmly. I may not have seen the opportunity to let her take a lead in problem-solving for next time. I would have spent that hour getting increasingly irritated that her blood sugar wasn't coming down, and probably would have texted her to test and correct as soon as she turned her phone back on after school.
In the scenario we've chosen, the numbers are hers to deal with in the moment they occur. Then, help is available if she needs it.
She knows she can text or call me whenever she needs my help. The nurse is there all day at school, and my daughter doesn't hesitate to stop in her office. The Dexcom receiver reaches our bedside tables so she can have the night off from responsibility. But when she's at school or out with friends, it feels like it's time to let her flutter around outside the nest a bit. We watch carefully from a short distance ready to come to her rescue whenever needed. Once she's home we talk about any glitches that occurred and about what she could do differently next time. For her, this seems like a great way to learn all she'll need to know when those safety nets aren't around anymore.
If I had a kid who regularly ignored highs and lows I'd think differently. If her Dexcom receiver didn't give us readings when she was in bed, I'd think differently. If she was littler, I might even think differently. If at any time I feel she creeps over the line of 'learn by doing' to a place where her safety is compromised, I'll not hesitate to reconsider all of the technology available to us. Everybody's experience with diabetes is different and we all need to do what works for us at any given time.
For now, though, this is what works for us.
*If you're unfamiliar, an explanation of 2 CGM in the cloud technology options are here and here. Essentially it enables the data from a continuous glucose monitor to be sent to a designated smartphone so that there is another set of eyes on the information.
None. Nada. Nil.
Half of a basement closet is dedicated to diabetes supplies. The usual suspects are there, unpacked from the three month supply boxes which arrive on our doorstep: pump supplies, dexcom sets, lancets, and strips. There's a large collection of manuals to diabetes devices and booklets given to us by various diabetes care providers. This is where we keep our collection of spare lancets, meters, tapes, and samples of stuff we are reluctant to throw out.
Until recently I have been the primary user of the closet. Supplies were put in and taken out only by me. Times are changing for the better, with a kid who is happily taking on a little more independence with a few things diabetes. One task she's taken on has been replenishing the supplies in her room, including lancets and test strips.
Here's where the cautionary part of the tale begins:
Happy that she was regularly ferrying the test strips from the basement, I neglected to keep up with the inventory. So yesterday as I started to pack the diabetes box for vacation I made an alarming discovery. There were no boxes of test strips in the closet. None. Nada. Nil.
We weren't OUT out. There were two vials in her room and some other partial vials in spare meters. I immediately ordered more and am extremely hopeful the box will arrive on our doorstep before we travel. If it does not, it's possible to purchase them over the counter. Just incredibly expensive.
A two part solution has been put into place to address this issue. I've put a note on my calendar and a reminder in my phone to reorder at the next possible interval. I can no longer rely on noticing the supply is running low before I make that call. Secondly, while attempting to support the responsibility and helpfulness of my daughter's new role as the designated strip fetcher, I've emphasized the importance of also being the designated strip inventory-er.
I'm ordinarily a bit of a supply hoarder. I feel much more comfortable with stuff stashed away, 'just in case.' In my mind, this 'just in case' has meant an insurance mix-up, a financial glitch, or a job transition. Now I know - it could come in handy for something as simple as packing for vacation.
All Out
Last week was a hectic one. After returning Monday from an extra-long weekend with family on my husband's side, I got right back into the business of helping my dad pack up his house. He moved from house to condo on Friday.
In the midst of the packing and moving, unpacking and organizing, there was still school and homework, piano and volleyball, the orthodontist and a weird fast-moving stomach bug, plus a Friday night school social. It was a fast-paced week.
My dad's new little dining set was delivered at 11 on Saturday morning, completing the string of deliveries and installations. My husband, daughter and I were there helping unpack boxes and screw in paper towel dispensers. We'd brought sandwich stuff with us and by noon we decided to christen the new table. Happily ready for lunch, my daughter entered her carbs into her pump, scrolled up to a dose, and hit 'go.'
Fur Elise played merrily from the pump. "No delivery. Pump is busy." (Which I've always thought was a weird phrase to program it to say...busy doing what, exactly?)
In this case, it was busy preparing to tell us the bad news: "Empty Cartridge. No delivery." Oh. Oops. In retrospect she remembered the low cartridge alarm going off overnight but didn't think of it again in the morning. In retrospect I remembered thinking when I changed the site Tuesday night that if Friday was as chaotic as I imagined it would be we might have to put off site change until first thing Saturday morning before we went to help unpack. That was the last I thought of it.
Fortunately, Dad's condo is only three and a half miles from our house. My husband was kind enough to make the insulin run and within half an hour, my daughter was eating lunch.
We had a good run. This is the first time my daughter has run out of insulin since she stopped making her own in 2002. But as summer day-trip season approaches, it led me to re-evaluate what we carry with us when we're out. For a trip within a few miles, like this one, I'll probably still not bother carrying insulin, but we've gotten lazy about bringing it with us when we're headed places farther afield for the day. What if we'd been an hour away at the beach or at a museum? This could have ruined a whole day, rather than just delaying a much needed lunch.
So I've ordered a Frio insulin cooling case to add to the collection of things we bring when we go out.
Choose your closing saying below:
Choose your closing saying below:
All's well that ends well. Live and learn. Better safe than sorry. Be prepared.
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