Reading is Fundamental

My daughter had a few late afternoon and evening lows last week.

When she's out and about, she carries juice boxes, glucose tabs and smarties. When she's home she prefers something different. There are occasional seasonal choices in the fridge like fresh apple cider or high-test lemonade leftover from a cookout. Usually, though, the home juice of choice is orange juice. She pours four ounces into her pink sippy cup and waits for the low to turn around. Nine times out of ten, unless she's under 50 or been exercising heavily, those 4 ounces bring the low up within 15 minutes and life goes on.



Last week, not so much. The lows seemed slower to respond. If it was dinner time and she hit 70 after 15 minutes, we'd eat and subtract some bolus insulin. Otherwise, she found herself adding more juice, or a little snack of fruit or crackers to make sure she came all the way up.

A couple of seemingly sticky lows in one week was weird. And a nuisance, especially at dinner time. What was going on? Maybe it had to do with impending full moon or some other such mysterious and passing variable. Or maybe something had changed and my daughter's new normal involved closer to 20 carbs per low.

Then I walked into the kitchen as she poured the last of the orange juice into her cup:

I accidentally bought low-carb orange juice. I don't drink it and my husband hadn't noticed when he slugged it down still half asleep in the mornings.

I read a lot of labels: cereals, snacks, bread, starches and countless other packages are fully assessed before they're consumed. I missed this one. Which explains why those lows wouldn't come up.





A House Divided

Language and Diabetes - Wednesday 5/18 There is an old saying that states “Sticks and stones may break my bones, but words will never hurt me”. I'm willing to bet we've all disagreed with this at some point, and especially when it comes to diabetes. Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don't care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let's explore the power of words, but please remember to keep things respectful.

"Words mean more than what is set down on paper. It takes the human voice to infuse them with deeper meaning."   -Maya Angelou

We are a house divided.

My daughter calls herself a 'diabetic,' and talks about the other 'diabetics' at school.  She thinks it's ridiculous that I avoid the word at all costs. 

In my mind, using the word 'diabetic' labels a person with a disease. Hearing or using the word makes me uncomfortable. 'Person with diabetes' makes the diabetes part more peripheral to the whole person, so that's what I use (and PWD for short).

Maybe it's my social work degree talking.  Labels are limiting, I've been taught.  There's more to a person than (insert any one personal characteristic here).  Labels separate us rather than bring us together.  Using one word to describe someone eliminates all of the other important characteristics which make up a whole, unique, interesting person.

I'm also concerned about the negative connotations of the word 'diabetic' in the popular media.  Do I want my kid grouped in with a collection of people the media (wrongly yet repeatedly) portrays as fat and lazy? You and I know those are all ridiculous, inaccurate depictions, but the general population does not.  Why go there unnecessarily?

Most importantly, I know my daughter is so much more than her diabetes. I fear that the 'diabetic' label will somehow supersede all of the other characteristics which make her her.

But yet, and not just to keep the peace, I'll admit that I can see my daughter's point.  A diabetic is something she is, just like she's a musician, a scholar, a reader, a baseball fan, a cook, a friend, a cousin, an actress and a teenager. 

Maybe, as long as it's not the only label, 'diabetic' is an okay self-describing word to use. She's not using it negatively or positively.  She's not using it exclusively of other descriptors.  She's using it matter-of-factly.

She uses it because words are, in the end, tools to convey information.   'Because I'm a diabetic, I got to eat a snack on the way back from the field trip.'  'All the diabetics got called to the office for a group picture to publicize the school's JDRF walk.'  'I'm following this one diabetic's Instagram account and it has hilarious memes on it.' 

Let's revisit the Maya Angelou quote I started with, "Words mean more than what is set down on paper.  It takes the human voice to infuse them with deeper meaning." 

I'm not going to start using the word 'diabetic.'  In my mouth, it sounds negative, limiting and simplistic.  My daughter will keep using it because to her, 'diabetic' is simply one of the many interesting things a person can be.  I will not be upset when she or others in the diabetes community use it because I am sure that, for them, it is conveying the meaning they intend.  Perhaps a house divided against itself can stand after all.

For more thoughts on why words do, or do not, matter, click here!