It's been quite an adventure raising a now-teenager who was diagnosed with diabetes just after her first birthday! Please realize that what you'll read here is not intended as medical advice; it's just the ramblings of a sleep-deprived mom. Always consult your medical team about your treatment options, but do stop by from time to time for a bit of perspective.
G6
The Dexcom G6 is up and running, and it's keeping us running.
Technologically we're totally impressed. It's accurate. The readings flow seamlessly from the transmitter to my daughter's iPhone and the Dexcom receiver, and then on to my phone and the Dexcom Clarity page online. And no fingersticks? Amazing.
We used our previous CGM, the G4, only as a general guide. Heading up or down? Always alarms between 2-3 a.m.? Should she do anything before changing for gym? It was less accurate and had crapped out months ago on sharing numbers to anybody's phone, so unless it was alarming with an urgent low, it was mostly background noise to be addressed eventually.
The G6 feels less like a lowly assistant making suggestions from the corner of the conference room and more like the boss. What it says goes. Low predicted in 15 minutes? Eat something. Now! Suddenly skyrocketing? Drop your pants and check that site! Clarity shows you've gone over 220 after lunch five of the past seven days? Fix something!
Some of that is good for us. Most of us get lazy with diabetes at one time or another, and of late, we have. Having the G6 looking over our shoulders and nudging us at every turn is causing more action than had been happening here, at least in terms of more minor excursions from a target blood sugar range.
Some of it, though, is wearing. Already. After 12 days. (But who's counting?)
The alarms are driving us nuts. Starting it up over a busy school play weekend followed by a Thanksgiving week full of family and food certainly didn't help. Diner pancakes at 10 p.m., daily servings of stuffing, and pecan pie two nights in a row are rare treats, and as the schedule goes back to normal, alarms are settling down. We learned quickly not to have both the Dexcom receiver, and all of our phones set to alarm when all of them are in the same house. The cacophony and the subsequent process of silencing them all would jar anybody's nerves.
We're also struggling with information overload. The numbers are in our faces all the time. Because the previous system's data went only to its own receiver, my daughter would look at it at mealtime, before bed, and when it alarmed. Now can see numbers whenever she opens her phone. And with share operational again, I too can see numbers anytime I want instead of looking at the receiver once a day- or less. A diabetes-life balance is, in my opinion, a very important aspect of living sanely. It will take some time to figure out how to compartmentalize the extra information so that it does not overwhelm.
Was it worth waiting for? Absolutely. The steady stream of accurate data is incredibly useful. It helps with hour to hour decision-making. Once the bulk of the data isn't skewed by Thanksgiving food, the long-term graphs will be incredibly valuable in adjusting basal rates and bolus ratios. And maybe when the data settles down into a more predictable range we won't mind seeing it so often.
Humbled
Have you signed Dr. Frederick Banting's birthday card yet?
I did, first thing this morning. On the card (you'll see it when you click the link above to sign it) there's an area to write a personal message. I wrote, "Thanks to your work, I have an amazing teenager."
Before Dr. Banting and Dr. Best made their discovery of insulin in 1921, people with Type 1 Diabetes died. Their bodies wasted away. It's humbling to consider.
In 2002, on a crisp December morning, we rushed my daughter to the hospital, and by mid-morning she was receiving insulin. She's now a thriving high school student who is looking forward to this weekend's school play, college in a couple of years, and a career in education.
Had she been born less than 100 years earlier, she simply would have died. Probably by Christmas, only a few days after we'd called the local doctor to stop by on his rounds to examine her.
I'm thankful to Dr. Banting, and his colleague, Dr. Best, for making insulin available so that my daughter can be alive. And I'm thankful for all of the discoveries and inventions that ensued, including modern synthetic insulins, increasingly accurate technology for glucose monitoring, and insulin-delivery tools that have come a long way from regularly boiling and sharpening the one syringe in the household.
Dr. Banting's birthday, now World Diabetes Day, helps put life with diabetes in perspective. There was no life with T1D before Dr. Banting. It's still a daily challenge, and the dangers aren't completely gone, but my daughter is here, and thriving. I couldn't be more grateful.
Happy Birthday, Dr. Banting.
Trick-or-Treat
It was 8:45 on Halloween. The doorbell hadn't rung for almost an hour. And then it did. We paused Survivor, and my daughter got up to greet the trick-or-treaters. She had enjoyed her door-answering responsibility all night, and I was glad to let her get up one more time.
Peeking through the living room window, she recognized a life-long friend at the door, dressed as Kim Kardashian.
She opened the door, and I could hear another voice, in addition to my daughter's and Kim's. There was a little chatting about the nice weather and what the girls had acquired in their travels. "There was a house handing out apples. Honeycrisp ones though, which are amazing, so I guess if I wash it I can eat it?"
My daughter then offered as much of our loot as the girls wanted to take. We didn't have as many kids as usual, and so generosity was in order.
"Are you sure? Thanks so much," Kim Kardashian exclaimed.
"Ugh, my mom won't let me eat most of it anyway," replied the other voice, which I was still trying to place.
"Take the airheads" was my daughter's quick response. "They're great for low blood sugars!"
Now, of course, I was able to narrow down which friend was accompanying Kim Kardashian on her rounds.
"Ha! Yes- I will! My mom buys terrible glucose tabs at Costco. I can't stand them."
Now Kim Kardashian's friend has a nice stash of airheads for her low blood sugar needs.
Who says Halloween and diabetes can't go well together?
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