We’ve been blessed with three different excellent endocrinologists
over the course of my daughter’s almost 9 years with diabetes. When we visit, we are greeted warmly. We are taken into a comfortable room and
spoken with. We are asked open ended
questions and listened to. A gentle
physical examination is given. We are
given excellent feedback and encouraged to play a part in clinical
decision-making. We are educated about
the disease and any new research or technology coming along. We are not allowed to leave until the
physician is sure we are comfortable with any changes in treatment. We leave empowered and reassured.
When the endocrinologist downloads the numbers from my
daughter’s pump, he doesn’t immediately start reprogramming basal rates or carb
ratios. First he says, “Look here….she
seems to be coming in low at dinner time most nights.” Then I say either, “You’re right, I can’t
think of why that would be,” or “Yes…she had softball practice every day this
week. Next week it’s only Tuesday so I’m
not sure that will be a pattern.” Then he suggests treatment changes. We
discussed over 2 visits the pros and cons of switching our fast acting insulin
brand. When lab results come in, they’re
facing me on the desk with the doctor leaning over and explaining the numbers.
Therefore, I find myself expecting a conversation at my own
and my daughter’s other medical appointments.
Too often, even with excellent physicians, a brief interview and exam
will lead a doctor to a diagnosis and to begin to start talking about
treatment. “Wait,” I’ll say, “She didn’t
mention that she’s also having occasional muscle aches too.” Or, “Your diagnosis sounds very likely, but
I’m wondering if you’d consider x as well because,” and I’ll state my
reasons.
I don’t always do this, of course. When the strep test comes back positive, we
take the prescription, do not pass “go” and head for CVS. If there’s a cavity, we have it filled. But
when I do start to discuss, doctors are often surprised. I know they’re pressed for time. I’ve just sat in the jammed waiting room, and
can see the harried looks in their eyes.
I also know they’re not used to conversations about the diagnosis
they’ve come up with. It’s easier if I
nod my head politely and assume they’ve solved my problem.
I’ve learned however, that in the long run, a working
relationship with a physician is much more useful than the more traditional
model. Not only is the doctor more
likely to get all of the information about symptoms and concerns to make a more
informed diagnosis, but I leave more comfortable with the prescribed treatment
and therefore more inclined to follow through with it.
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